Data Relationship

    On my terms

    We heard this from a broad cross section of society.

    Many people don't have a strong need for data sharing health and care solutions and they don't recognise a radical benefit to their lives. They are concerned with more abstract issues of autonomy, and worry about losing control of their own decisions. This tends to be an uneasy relationship but can be improved by transparency over data use and the provision of simple data controls.

    People with this data relationship said

    So what can we do?

    Accommodating for people with this relationship to data might involve designing flexible systems that allow easy, case-by-case opt-out, or storing data locally so people can see what data exists about them and retain close control of it. It will also be important to provide education about controls, regulations and the benefits of data sharing so that reluctance to share data is not driven by a lack of understanding.

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